Information and Referral Q&A

Image: Photos of Jaime HArrell and Maritta Coffeyby Amber Carlton

 

For most consumers of The IC, the first person they talk to is Maritta Coffey, Information and Referral (I&R) Specialist. Each month, she connects with anywhere from 200-300 people from Colorado Springs and The IC’s six county catchment area. But what is Information and Referral exactly? We sat down with Maritta and Jaime Harrell, IL Program Manager, to find out.

Can you explain what I&R is and what it does?

Jamie Harrell (JH): It’s one of the five core services of the Centers for Independent Living (CIL) that every CIL across the country offers to their communities. So no matter which CIL you go to, you’ll find it there.

Maritta Coffey (MC): Through I&R, we provide resources and referrals so that individuals with disabilities can maintain, obtain, or become independent.

Is I&R just for people with disabilities?

JH: I&R is unique in that we offer disability-related resources to anybody of any age – community members, agencies, businesses, individuals with or without disabilities. It’s really a resource for the whole community, not just for people who have disabilities. So if you are invested with people with disabilities, you should be reaching out to The IC to gain access to these resources and find connections.

How can someone connect with I&R?

MC: People can call, email, or walk in. For calls and emails, I respond to them with resources and information. If someone walks in, they just check in at the front desk and fill out their required paperwork. Then they meet with me and we talk about their situation and what resources are available to potentially help them.

Do people have to know what they want or need before they contact I&R?

JH: A lot of times when people come in, they don’t know what they want. They just know that they want support in learning skills or finding resources, support groups, housing, or a job. And they don’t know those next steps. So that’s where I&R comes
in. We help people look at the bigger picture and figure out what the resources are in the community and what the resources are at The IC. We help them navigate that process and connect people to the next steps.

Is it easy to get them the resources they need?

MC: For some things, yes. But for other things, there are sometimes other barriers that may be keeping them from achieving their goals. If they’re looking for housing, for example, there might be some other things they need to take care of first. So let’s say they don’t have good credit. We’ll give them information on how to fix that. Depending on the situation, it takes time to sit down and talk to them and figure out how to move forward.

Do you prefer to talk directly to the potential consumer, or can a caregiver handle it for them?

MC: We always try to talk directly to the person with the disability, whenever possible. It’s not always about giving out information that you can just Google. It’s figuring out what else they need to live independently. So we want to work towards helping people with that and it sometimes takes some time. And their participation is oh-so-important because it’s driven by them and what they want to do. People really like that they are going to be empowered.

What do you enjoy most about your job?

MC: I’m always excited when I talk to someone and then I see them come in later and they’re changing and happy and really independent. It’s absolutely genuine and it’s all them doing it. They’re thriving because they’re in control. It’s life-changing to see that.

If you’d like to learn more about the disability-related information and resources The IC offers, call Maritta at 719-471-8181, email her at mcoffey@the-ic.org, or just drop in!

Annual ADA Event: Advancing Disability-Friendly Health Care

Man in wheelchair talking to mayor of Colorado Springs.by Amber Carlton

 

What if you visited your doctor and weren’t able to navigate through the hallway, get onto the exam table, or see over the receptionist’s counter? If you’ve never had an experience like this, it might be hard to imagine. But these are the kinds of barriers that people with disabilities face every day when trying to access health care. So for The Independence Center’s annual ADA Celebration Luncheon this year, the focus was on “Advancing Disability-Friendly Health Care.”

Each year, the luncheon celebrates the signing of the Americans with Disabilities Act (ADA), which took place on July 26, 1990. A crucial turning point in the disability rights movement, this landmark legislation established a legal framework to protect people with disabilities from discrimination in employment, to ensure that buildings and paths of travel are accessible, and to provide reasonable accommodations.

At this year’s event, which was held July 26 at the Hotel Eleganté Resort and Conference Center with over 270 people in attendance, The IC examined the need for more accessible medical services for people with disabilities here in Colorado and around the country. Katie Pelton, anchor at local news station KKTV, emceed the event and a variety of speakers told their personal stories about their experiences with accessibility in medical care.

The keynote speaker was June Isaacson Kailes, MSW, LCSW, a highly respected disability rights advocate and consultant. Recognized worldwide as one of the original leaders in the Independent Living movement, she took a humorous look at the barriers people with disabilities face when trying to access medical care. Her presentations featured amusing cartoons depicting crowded waiting rooms without accessible spaces, difficulties getting through hallways, accessible exam rooms used as storage, and the challenges of wheelchair users being examined in their wheelchairs.

Betty Jo Sjoberg, a consumer of The IC, recounted why she nominated her medical provider, Matthews-Vu Medical Group, during The IC’s Accessible Medical Equipment Giveaway last year. The practice received a Hoyer lift and an accessible exam table last year from the IC Fund for Persons with Disabilities.

“The adaptive medical equipment makes it so much better for us, safer and also more comfortable,” Betty Jo said. “When you have a disability and you already feel different, and then you go into a medical practice and they’re scurrying to find a way to accommodate you, you start to feel very self-conscious. To have things in place, I cannot express to you what a difference that makes. We feel, I think, more apt to talk and share our concerns with our medical professionals.”

During the event, Patricia Yeager, CEO of The IC, announced that another $75,000 will be invested this year to make dental care disability-friendly. “What we’re planning, is to work with dental health care providers to expand accessible dental services to people with disabilities here in Colorado through another medical equipment giveaway,” she said.

The entire event can be viewed on The IC’s Youtube channel at https://youtu.be/KWP_vKNDQgs. Make sure to subscribe while you’re there! And mark your calendars for next year’s ADA Celebration, which will be held on Friday, July 21, 2020.

Test Your Disability Knowledge!

Chances are you know someone with a disability or have a disability yourself. But how much do you know about the facts and issues surrounding disabilities? Take this quiz to find out! (Answers are below but no peeking!)

1. How many people in the U.S. live with a disability?

a. 10 million
b. 22 million
c. 57 million
d. 100 million

2. It’s better to ask a person with a disability if they want assistance before jumping in to help with everyday activities. True or false?

3. Only people who are unable to walk use wheelchairs. True or false?

4. Most disabilities are not easily visible. True or false?

5. Which of the following is the most commonly diagnosed mental health condition?

a. Depression
b. Anxiety Disorder
c. Attention Deficit Hyperactivity Disorder (ADHD)
d. Post-traumatic Stress Disorder (PTSD)

6. Which of these is required for a service animal?

a. Have specific certification
b. Wear identification (such as a vest or tag)
c. Both of the above
d. Neither of the above

7. Signing up for local emergency alerts will give you access to the most up-to-date information about emergencies. True or false?

8. Self-advocacy and system advocacy are the same thing. True or false?

Disability Quiz Answers

How did you do? Find out below.

1. Answer: C

About 57 million people in the U.S. live with at least one disability, making the disability community the largest marginalized group. One in five people will acquire a disability during their lifetime. (2013-2017 American Community Survey)

2. Answer: True

Don’t assume what people with disabilities can or cannot do. Ask before you assist and be willing to help if they tell you that they need support.

3. Answer: False

Mobility disabilities fall on a spectrum; some people who use wheelchairs may be able to stand or walk short distances.

4. Answer: True

Most disabilities are invisible. Examples include learning disabilities, chemical sensitivities, and chronic pain.

5. Answer: B

18% of adults have an Anxiety Disorder, involving persistent, excessive fear or worry in everyday situations.

6. Answer: D

Service animals must be individually trained to perform the tasks needed by the owner, but no specific certification or identification is required.

7. Answer: True

You can sign up for emergency alerts at www.elpasoteller911.org. Go to Emergency Notifications and sign up for reverse 911 calls and/or text alerts.

8. Answer: False

Self-advocacy involves owning your personal rights and responsibilities, speaking up for yourself, and making decisions about your life. System advocacy is identifying and addressing problems at the systems level; it may lead to new or changed laws, policies, and procedures.

There’s a lot to learn and know about disabilities, which is why The IC offers a variety of trainings that cover topics such as these. If you know of a business, school, church, or other organization that would benefit from disability training, call our Advocacy department at 719-471-8181 for more information.

Making Dental Care Accessible

by Amber Carlton

 

Studies show that oral health is an important part of maintaining overall health. Image: Dentist talking to man in dental chairBut for people with disabilities, finding accessible dental care can be a real challenge and may lead to them forgoing routine visits to the dentist.

The need for accessible dental practices was brought to light during a series of focus groups conducted by The IC to gain an understanding of real-life experiences with dental care. The results were compiled into a report titled, “Creating Disability-Friendly Dental Practices.” Download the report at http://bit.ly/dentalreport-ic.

The report shows that people with disabilities face many obstacles to obtaining accessible dental care, including transportation or parking issues, narrow or small offices, denial of American Sign Language (ASL) interpreters, inaccessible paperwork, confusion about medical instructions, trauma triggers, and negative attitudes about disability.

To address this issue, The IC, through its IC Fund, has awarded $75,000 worth of accessible dental equipment to five local dental practices, two of which are nonprofits, in the Pikes Peak Region this year. Selected practices received a wheelchair lift, medical masks that allow patients to read lips, and other tools and resources that can make the experience of going to the dentist easier and more comfortable for people with disabilities.

To view the recipients of the equipment, CLICK HERE.

The IC Launches New Low Vision Program

Blindness & Low Vision LogoBy Amber Carlton

 

As part of its commitment to helping individuals with low vision and blindness live a full and active life, The Independence Center has launched a brand new Low Vision program.

The goal of the Low Vision program, which is geared toward people ages 18 – 54, is to help individuals maintain their independence and improve their quality of life by learning new skills and connecting with peers.

Services provided include:

Peer support meetings.

Demonstrations of and training on the latest adaptive technology and devices.

Home visits to assess and assist with making the environment safe and accessible, including:

    • Techniques for using appliances safely.
    • Cooking and cleaning.
    • Organizing wardrobes and other personal affects.

There is no cost for these services, and the program can assist anyone living in El Paso, Teller, Park, Kit Carson, Lincoln, and Cheyenne counties.

Life can be fulfilling and productive with any degree of vision loss. Give The IC a call at 719-471-8181 to learn more!

Five Fast & Furry-ous Facts…

Golden Retriever Service Dog

By Amber Carlton

About Service Animals

  1. The Americans with Disabilities Act (ADA) defines a service animal as one that has been individually trained to perform tasks for a person with a disability.
  2. Only dogs and miniature horses qualify. So no cats, birds, snakes, or squirrels!
  3. A service animal doesn’t have to wear a vest, ID tag, or specific harness.
  4. Proof that the animal has been certified, trained, or licensed as a service animal is not required.
  5. If a service animal is out of control or not housebroken, access may be legally denied.

About Emotional Support Animals (ESAs)

  1. ESAs are often used as part of medical treatment for anxiety and phobias.
  2. ESAs provide comfort but are not specially trained.
  3. Unlike service animals, ESAs are not protected under the ADA.
  4. Access for ESAs is up to the discretion of the business or property owner.
  5. Falsely representing an ESA as a service animal can result in a fine and harms those who depend on trained service animals.

Disability Benefits Q&A

Photo of Suzi Arnold and Daniel RatcliffBy Amber Carlton

 

Think you might qualify for disability benefits but don’t know where to start? The IC offers services that can empower you to advocate for yourself when it comes to benefits. Check out what Benefits Specialist Suzi Arnold and Benefits Coordinator Daniel Ratcliff have to say about the most commonly asked questions they receive.

What are the common misconceptions about disability benefits?

Daniel Ratcliff (DR): That everyone will be denied the first time they apply; that you can’t work while receiving benefits; that it covers short term disability like a broken arm. There’s also a big misunderstanding about the difference between SSI and SSDI.

What’s the difference between SSI and SSDI?

Suzi Arnold (SA): SSDI is Social Security Disability Insurance, which is a benefit that people can get if they have
enough work credits with Social Security. SSI is Supplemental Security Income and it’s needs-based.

What type of benefits can The IC help consumers with?

DR: We help with all applications for state and federal benefit programs, and we also provide education and referral on these same benefit programs.

Is it difficult to get disability benefits?

SA: It just depends. There are very specific rules. There are some very black and white situations like blindness and deafness. But then there are other disabilities that aren’t as cut and dried, and you have to have extensive testing and documentation in your medical records. And you have to prove that the disability is preventing you from performing
Substantial Gainful Activity (SGA).

DR: You also have to be receiving current treatment, and that can just be as simple as a medication regimen.

Can the average person apply successfully for disability benefits?

SA: Absolutely! But if we’re helping with an application, what is submitted is usually more comprehensive than if they tried to do it on their own, and that can increase their chances of being approved the first time. We help teach them where they need to add more of their story to the application.

DR: And not to downplay certain things. A lot of individuals want to appear more able than they really are.

What happens if my application is denied?

SA: If somebody gets a denial letter, they have 60 days to file an appeal. We can’t help with that. An appeal involves going to court and arguing it, so it needs to go through a disability consultant or attorney. But we can provide referral names for both, and we can help connect you to other disability resources at The Independence Center.

If you would like help applying for disability benefits, contact The Independence Center at 719-471-8181 to set up an intake appointment.

American Legion Partners with The IC to Create Accessibility

Photo of American Legion Hall in Cripple CreekBy Amber Carlton

 

The Victor-Cripple Creek American Legion Post 171 is a growing hub of activity and outreach in the area. Membership has more than doubled in the last three years, and its members provide numerous services to local veterans and to the community.

To better accommodate members and visitors, they’ve also been busy refurbishing the post, which was originally a church built in 1900. To help make the building more accessible, they reached out to The Independence Center for assistance in installing a ramp and new concrete sidewalk.

The project received a $5,000 grant from The IC Fund, which supports projects that increase independence for people with disabilities. Thanks to the grant, along with the help of Post members, community volunteers, and contractors, the new ramp is now welcoming people with and without disabilities into the historic building.

“As a result of your generous support…veterans and members of the community can now access our facility,” Richard R. Ingold, Post 171 Adjutant, says of the grant. “Thank you!”

For more information on The IC Fund, visit bit.ly/theicfund.

The IC Wins Business for the Arts Award

Photo of The IC reps with award.by Amber Carlton

 

The IC recently received a Business for the Arts Award from the Colorado Business Committee for the Arts (CBCA). This award is given to individuals and companies who “have gone above and beyond to support the arts and creative industries through innovative partnerships, arts integration, creative workplaces, economic development in the creative sector, arts advocacy, employee engagement, and/or philanthropy,” according to the CBCA.

We are honored to have received such high recognition for our efforts to lift up the voices of the community we serve through
unique partnerships and programming such as the Art of Accessibility series, which highlights artists with disabilities.

Click here to learn about upcoming Art of Accessibility exhibits.

Troy’s Journey: From Surviving to Thriving

Photo of Colleen and Troy Gagliardiby Amber Carlton

 

Troy is an energetic, outgoing 12-year-old boy with a mischievous smile, a quick wit, a big heart, and a love for snowboarding. Looking at him today, it’s hard to believe that it’s something of a miracle that he’s alive. His mother’s uterus ruptured while she was in labor and he was without oxygen for over 20 minutes, resulting in several disabilities including a traumatic brain injury (TBI), a seizure disorder, Tourette Syndrome, and autism. But despite the odds, Troy not only survived, he has thrived!

Troy’s parents, Mike and Colleen Gagliardi, attribute much of Troy’s progress to a Medicaid waiver that allows them to act as paid caregivers through The Independence Center. Colleen is now able to stay at home with Troy to provide him with the hours of therapy he requires each day. Mike, who has a full-time job in I.T., acts as her backup. Because they can devote much more time to their son, Colleen says that “Troy has come so far.”

The program, which pays the Gagliardis for the hours that go above and beyond their normal parenting responsibilities, has been a “godsend,” says Colleen. “The Independence Center has been great as a job. But I really do believe they care about us, and I know they care about Troy. We love the communication, the training, and the fact that they know us the way that they do. That really sets them apart.”

The couple encourages others who are caring for loved ones with disabilities to investigate the paid caregiver program. Mike adds, “Why would you not use everything that you can to take care of your loved one?”

For more information on becoming a paid caregiver, call 719-471-8181.

TBI Facts

According to the Centers for Disease Control (CDC), traumatic brain injuries (TBIs) are a “major cause of death and disability in the U.S.” Falls are the leading cause of TBIs; however, they can be caused by any blow or jolt to the head, or can be the result of a stroke, vascular malformations/anomalies, or neonatal/perinatal/developmental injuries. Those who survive a TBI may feel the effects for a few days or the rest of their lives, including difficulty with memory or thinking, vision, hearing, movement, and personality changes or depression.

What Is Tourette Syndrome?

Troy is one of thousands of school-age children in the U.S. living with Tourette Syndrome (TS). A condition of the nervous system, it causes “tics,” which present as repeated twitches, movements, or sounds that can’t be controlled. While there is no cure for TS, there are treatments that can help. Learn more at tourette.org.